Newbie on Lialda

By vburner61 Latest Activity December 26, 2011 at 3:05 am Views 3,825 Replies 8


Hey there - turned 50 in September and just got diagnosed with Crohn's and Colitis as well as type 2 Diabetes. He told me my colon is rock hard…seems I've had this since childhood. The Doctor put me on Lialda and so far it seems to be helping. Just wondering if anyone else is on this and suffered any side affects? Also I have no insurance like most people and wondered how to go about getting help to pay for this. It's $825 a month!!! I was able to get the 1st month and Jan. pills because of a temp. insurance in TN. but come 1/3/12 it's over. Also has anyone been able to get disability for this?

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Replies (8 replies)

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  • re1ndeer
    re1ndeer January 4, 2012 at 6:40 pm   

    I have found a site that might help also with your medications.

    I will post it here :

    They offer coupons for drugs either not covered by insurance or without insurance.
    You do have to sign up on their site to get the offers. Hope this helps.

  • re1ndeer
    re1ndeer December 27, 2011 at 10:46 am   

    Hi, and welcome to crohn's connect. I had Colitis, I had the surgery, and I'm on disability. I've never been on your drug Lialda, so I can't help you there. But, I also have diabetes, along with a few other ills.
    If you want to apply for disability, you need alot of medical evidence that you can not work for any reason. You will need documents from all of your doctors along with medications, hospital visits, etc.
    Maybe you can talk to your doctors, about the cost of this drug, and they can work with you by giving you a drug that may be lower in cost. The other choice try and contact the manufacturer of your drug, sometimes they work with patients, and lower their cost.
    Good luck.

  • vburner61
    vburner61 December 27, 2011 at 10:51 pm   

    Thanks for the info. I also have other problems besides the crohns…found the manufacturer today online and they have paperwork to fill out. Hopefully that will work. Hope you're doing well. Have a Happy New Near!

  • lindylou47
    lindylou47 December 31, 2011 at 11:32 am   

    Hi vburner. I have crohns-colitis. I was on Lialda for quite some time. Had no side effects, but when I changed gastros, he said he didnt consider Lialda a good drug, so he put me on Sulfasalazine, then added azathioprine. I dont have any side effects from these either which is surprising as I am usually a side effects dream! As far as cost Lialda used to have a web site where if you got a Lialda card from the doctor(gastro) it never cost me any more than 30.00.
    I have very good insurance from my husbands work, so I cant help with the disability question, but I would SURE ask about the Lialda card!
    Hope this helps, and you are having a pain free day. Happy new year!!

  • vburner61
    vburner61 January 4, 2012 at 1:30 pm   

    Hi lindylou…thanks for the info. I found the drug card and the offer expired 12/31/11. I went the the drug companies website and found paperwork that I downloaded and will take to the doctor and hopefully get approved for assistance. Thanks for the other drugs to ask the doctor about. I will ask him about them. Hope you're doing well. ~ V

  • lindylou47
    lindylou47 January 8, 2012 at 8:33 am   

    Hi vb, how is it going? Hope you were able to get assistance, Was sorry to hear about the card thing expiring. Have you talked to the doctor yet? Would be interested in hearing what he had to say, especially about the medications. Hope to hear from you soon. l

  • vburner61
    vburner61 January 18, 2012 at 6:36 pm   

    Hey llou…well my insurance was extended until 1/30/12. Got my paperwork signed by the doctor and am just waiting to hear from the drug company. Got the stomach flu and it was all I could do to function. It really scares me to be around sick people. I've read where one of the symptoms of crohn's is an overactive immune system. So it doesn't work right to begin with. I asked my doctor about that and he was impressed I did some research about it. I guess he's not used to people looking up what is wrong with them…lol. Hope you are doing well. ~ V

  • lindylou47
    lindylou47 January 18, 2012 at 6:58 pm   

    Hi vb. Sorry to hear you had the flu! Thank the lord, i havent. I take sulfasalazine(mesalamine) and azathioprine, so I try not to be around people that are ill. Hope everything works for your prescriptions. Its been snowing for a few days here, so I bundle up real well. lol. Hope to hear again how you are doing. Have a great week!! L

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